To Whom It
May Concern-----
Congressman Mo Brooks recently made
me aware of the burden I, and others with pre-existing conditions, have been
putting on all of those who have done things “right.” I cannot tell the feelings I have over this
sudden epiphany—I have been so selfish to expect someone else to pay into the
same system I do—a person living with M.S. having the same health care as
someone who doesn’t—appalling!
So, I thought it might be
appropriate to write an apology for this inconvenience, this burden, but the
trouble is I am not sure who that person might be. Given the criteria, this is not an easy task.
Let’s start
with these requirements:
I need to
find the neighbor that has never:
·
Eaten a Twinkie or an Italian sub or Velveeta cheese, a chip, a
cheese stick (you remember those packages of cheese and sticks to dip in—and don’t
tell me you never licked the plastic wrapper), French Fries, whipped cream from
a can or even better-Cool Whip, or anything else laced with toxic preservatives.
·
Drank a diet soda, drank too much coffee, too little coffee, too
much water, too little water or more than one glass of red wine with dinner.
·
Speaking of toxins—must never have dyed their hair and what about tattoos?
Do we really know if that ink is safe?
- ·
Lived in a home with toxic mold.
- ·
Been in a car accident.
- ·
Been in a fire.
- ·
Has never been divorced, lost a job, experienced a break-up,
moved, or been homeless.
- ·
Has never been to war.
- ·
Never worked around asbestos.
- ·
Been in the sun too long, YET, remembers to take vitamin D as
well.
- ·
Allergies –especially those requiring an epi-pen.
- ·
Had diabetes.
The
list could go on but this is a good start—autoimmune disease, PTSD, asthma, stress,
depression, cancer and premature births could be a result of such choices, of
such crazy and wayward living.
This person
must:
- ·
Have their own insurance or be born into a family with insurance.
- ·
Be employed and earn enough to never be hungry, cold or without a
phone and electricity.
- ·
Be able to go to the dentist—that means have the cash and the
transportation, dental disease is bad for the whole body.
- ·
Have a body mass proper for their height and weight.—Is there a
proper height and weight? Is it the same
for all of us?
- ·
Have transportation.
- ·
Must have genetic testing to prepare for the possible condition
that might put them in the dreaded “Pre-existing” category.
- ·
Exercise! That means 30
minutes of cardio three times a week, some weight bearing exercises, and walks every
day.
- ·
Get a good night’s sleep every night.
- ·
Most importantly this person must continue to live this healthy
life in order to get through that gap year.
You know that gap year? The year
when you leave your employer’s insurance and move into retirement, or the year
you come off of your parent’s insurance and move onto….?
- ·
Be willing to move to another state to get insurance if their
state doesn’t accept the waiver..just because one person is making healthy
choices doesn’t mean all the people in that family are. Healthy people can have family members with
pre-existing conditions.
- ·
Never age---once a person is a senior citizen they have
pre=existing conditions-after the age of 50 we are all immune compromised.
Of course this part of the list is a
little difficult because the things I think were right didn’t cut it so maybe
shopping at Whole Foods, and drinking a certain type of bottled water should be
on the “must do” list, maybe there are types of friends, private schools and shopping malls I should have paid more attention to as well. I imagine a college
education and no more than 2.4 children would be ideal---does it matter
how my children look? Hmmm….Congressman
Woods---Does that matter?
Now this living right loses ground
when we think of all those born with a condition that is “taxing” on our
healthy neighbors.
What about
the baby resting comfortably in a womb awaiting the bright lights of life to
shine on them?
About
3%, with no power of a choice, of these children will rely on us to ensure they
get to live out their pursuit of happiness.
Of course we could go Old Testament and blame the parents—blah blah
blah.
Maybe I am being too hard on
Congressman Woods, who let’s face it is taking the heat for something he must
be discussing with his peers, but his voice is the one I heard/read. And I can only imagine that he could say
these words simply because he does not know what he is talking about, and
honestly I am glad if he has had a life that has afforded him this
ignorance. It is obvious he has never
thought about hoarding medicine, never asked a spouse to stay at a job for the insurance,
and never told his family that he would stop a treatment before putting his
family into a financial crisis.
This may also mean he has never
experienced the kindness and generosity of family, neighbors and strangers
alike when one is experiencing physical and chronic illnesses. He has never had to accept charity to afford
treatment or physical assistance to accommodate a need.
I said my prayers every night, I
still say my prayers every night, loved and love my family, read good books,
read good books to our children, I made mistakes, I did not always treat my
body as well as I could, I was too hard on our children, I was too easy on our
children, I tried my best to be kind, to love well, to appreciate each person
as their very own story. There are things I would change and things I wish
never occurred but I have entertained angels unaware (Hebrews 13:2) because of
my circumstances and I can’t imagine losing that.
Yesterday I went to have a haircut
and as it became increasingly difficult for me to keep my head back against the
sink, and even more difficult to lift my head from the sink, I allowed the very
kind and gentle hands of an angel (so to speak) to lift me up.
Remembering that moment, all the humility (NOT a negative word) and the gratitude, a greater truth was revealed--it may be that the public vulnerability some of us share may make
people uncomfortable with their own vulnerabilities, and if there were a “right
way of living” we could prevent all that messy stuff. Wearing the places we need help out on our own
sleeves.
There is no “right” way to avoid all that makes this life messy, all that makes us rely on each other—nothing to apologize for—not my choice --not my fault.